The unmet palliative care needs of those dying with dementia.
نویسندگان
چکیده
An estimated 33.9 million people are living with dementia worldwide. The overall estimated median survival time from onset of dementia to death is 4.1 years for men and 4.6 years for women, with longer survival times in those with early-onset dementia. Much has been discussed about the needs of this vulnerable group of people particularly in terms of their health-care and end-of-life care (EoLC) needs. However, the literature suggests that people with end-stage dementia are still not receiving adequate or appropriate EoLC. Difficulty diagnosing dementia, a stigma surrounding the disease, lack of education of the dementia disease process and the ability to identify complications encountered at end-stage dementia by health-care providers, families and carers are some of the factors preventing those with dementia receiving effective EoLC. Great strides have been made to improve dementia palliative care; however, this cohort of patients still receive fewer referrals to appropriate palliative care services than other terminally ill patients.
منابع مشابه
Effects of two feedback interventions on end-of-life outcomes in nursing home residents with dementia: A cluster-randomized controlled three-armed trial
BACKGROUND Despite increased attention for palliative care in dementia, recent studies found burdensome symptoms and unmet family caregiver needs in the last phase of life. Feedback is being used to improve the quality of palliative care, but we do not know how effective it is. AIM To assess the effect of two feedback strategies on perceived quality of end-of-life care and comfort in dying nu...
متن کاملDying with dementia in long-term care.
PURPOSE To better understand the experiences and potential unmet need of persons who die in long-term care. DESIGN AND METHODS We conducted after-death interviews with staff who had cared for 422 decedents with dementia and 159 who were cognitively intact and received terminal care in U.S. nursing homes (NHs) or residential care-assisted living (RC-AL) settings. We conducted family caregiver ...
متن کاملFamily members’ perceptions of end-of-life care across diverse locations of care
BACKGROUND The goal of the study was to assess perceived level of satisfaction with end-of-life care, focusing on the last 48 hours of life. METHODS A previously validated instrument was used in a telephone survey with bereaved family members (n=90) of patients who died within an organization in British Columbia. RESULTS Bereaved family members had many unmet needs for information about the...
متن کاملEnd of life care: A scoping review of experiences of Advance Care Planning for people with dementia.
Despite increasing attention given to dementia by international governments and policy makers, the focus of end of life care has been on the dying trajectory of malignant disease. People with severe dementia have complex physical and psychological needs, yet the disease is not always recognised as terminal. Advance Care Planning involving people with dementia and their families can provide oppo...
متن کاملPalliative care for people with dementia in the terminal phase: a mixed-methods qualitative study to inform service development
BACKGROUND When entering the dying phase, the nature of physical, psychosocial and spiritual care needs of people with dementia and their families may change. Our objective was to understand what needs to be in place to develop optimal palliative care services for the terminal phase in the face of a small evidence base. METHODS In 2015-2016, we performed a mixed-methods qualitative study in w...
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عنوان ژورنال:
- International journal of palliative nursing
دوره 21 3 شماره
صفحات -
تاریخ انتشار 2015